Just read a really interesting post from a parent asking whether he should step out and hand over to an advocate to speak on his son’s behalf. Dad, you ARE an advocate. There are a lot of people with disabilities who (very understandably) think that parents are controlling them and sometimes that belief takes a brush and paints all parents with the same color. Truth is there are parents like that and there are parents who aren’t like that and until a person can speak up for themselves they often will need someone to do it for them. Sometimes that may never happen so that ‘silent’ voice will never be heard unless there’s a willing other to do it for them. All that is okay. There can be a great gap also between the parents perception of things and the way those with disabilities see things. As with everything in life, what is most important is that communication and dialogue continue, it’s the only way to move forward. Of course we’re telling our own story, no one can tell anyone about how their life is impacted by a disability, it’s individual to us all and equal space needs to be given to all. Can take a long time to become a self-advocate, with or without a disability….me? ….still learning.
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